My parents recently went on a trip and left me to fend for myself.
I’m kidding. My sister was with me. We’re perfectly capable of fending for ourselves and survived purely on junk food, takeout, sugar — and caffeine.
(Just kidding, Mom.)
My parents need to travel on their own sometimes. When you have a sick kid, you forget to take care of yourself and do things you’ve never done before. It was their first flight, and they wanted to see how hard it would be to get me on an airplane.
My plans, on the other hand, were simple: I had my care staff help out. Not everyone has access to care, and I’m very thankful that I do because it allows my family to do things like this.
While my parents were gone, I started rewriting part of my book and editing the rest. I’m trying to get it ready to query in the fall, but I don’t know how many rewrites or edits it’s going to need or how long the process will take.
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Fall is a tentative deadline. It’ll happen when it happens.
Other than that, we took care of our pets and tried to see how many YouTube videos we could cram into one day. I also tried to see how much I could read. We missed our parents, though, and we’re happy they’re back.
I don’t mind traveling, but I also don’t have wanderlust like some people. It’s not something I’ve always needed to do, something I couldn’t live without. I like my home, and my bed is comfy. Traveling is nice, yes, but when I do travel, I like to stay closer to home. A couple of nights is fine with me.
We do have a big road trip that we would like to plan, but that’s in the future. For right now, I’m entirely content to read a book on my deck or at the lake.
Note: SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of SMA News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to spinal muscular atrophy.