3 New Spinraza Treatment Sites Added for SMA Patients in England

3 New Spinraza Treatment Sites Added for SMA Patients in England
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Adults with spinal muscular atrophy (SMA) can now receive treatment with Spinraza (nusinersen) at three new sites in England.

With the addition of these centers, there are now 11 National Health Service Foundation Trust sites across the country that offer the disease-modifying therapy developed by Biogen, according to a press release from Muscular Dystrophy UK.

National Health Service (NHS) England, the country’s publicly funded healthcare system, recently informed Muscular Dystrophy UK and other SMA patient groups of the additional treatment locations.

New sites for patients eligible under the managed access agreement include King’s College Hospital, North Bristoland University Hospital Southampton.

In addition to these centers, Spinraza treatment is also available at Nottingham University HospitalsOxford University Hospitals, Salford Royal, Sheffield Teaching Hospitals, St. George’s University Hospitals, The Newcastle upon Tyne Hospitals, University College London Hospitals, and University Hospitals Birmingham.

In May 2019, the National Institute for Health and Care Excellence (NICE) recommended the therapy for NHS funding, enabling SMA patients of all ages to be treated with Spinraza in England. The decision made Spinraza the first treatment targeting the underlying cause of SMA to be included in the country’s public health program for presymptomatic and symptomatic SMA types 1, 2, and 3.

An independent body, NICE provides advice and standards for healthcare, including which licensed medicines the NHS will fund. Previously, the agency had recommended against Spinraza’s inclusion into the subsidized public health system due to concerns over its long-term effectiveness and high cost.

Also last year, NHS England and Biogen established an agreement to continue to observe the impact of the NHS-funded treatment for a limited time period, allowing for the collection of further data on its effectiveness.

Based on available clinical evidence, NICE and NHS England announced amendments to the managed access agreement for Spinraza after reconsideration of agreement eligibility. In July 2019, NICE issued its final guidance for Spinraza treatment.

It is estimated that between 600 and 1,200 children and adults in the United Kingdom currently live with SMA.

Spinraza is approved to treat SMA in several countries, including the United States, across the European Union, Australia, Brazil, Japan, Switzerland, South Korea, Canada, and Chile.

Mary M. Chapman began her professional career at United Press International, running both print and broadcast desks. She then became a Michigan correspondent for what is now Bloomberg BNA, where she mainly covered the automotive industry plus legal, tax and regulatory issues. A member of the Automotive Press Association and one of a relatively small number of women on the car beat, Chapman has discussed the automotive industry multiple times of National Public Radio, and in 2014 was selected as an honorary judge at the prestigious Cobble Beach Concours d’Elegance. She has written for numerous national outlets including Time, People, Al-Jazeera America, Fortune, Daily Beast, MSN.com, Newsweek, The Detroit News and Detroit Free Press. The winner of the Society of Professional Journalists award for outstanding reporting, Chapman has had dozens of articles in The New York Times, including two on the coveted front page. She has completed a manuscript about centenarian car enthusiast Margaret Dunning, titled “Belle of the Concours.”
Total Posts: 85
Ana holds a PhD in Immunology from the University of Lisbon and worked as a postdoctoral researcher at Instituto de Medicina Molecular (iMM) in Lisbon, Portugal. She graduated with a BSc in Genetics from the University of Newcastle and received a Masters in Biomolecular Archaeology from the University of Manchester, England. After leaving the lab to pursue a career in Science Communication, she served as the Director of Science Communication at iMM.
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Mary M. Chapman began her professional career at United Press International, running both print and broadcast desks. She then became a Michigan correspondent for what is now Bloomberg BNA, where she mainly covered the automotive industry plus legal, tax and regulatory issues. A member of the Automotive Press Association and one of a relatively small number of women on the car beat, Chapman has discussed the automotive industry multiple times of National Public Radio, and in 2014 was selected as an honorary judge at the prestigious Cobble Beach Concours d’Elegance. She has written for numerous national outlets including Time, People, Al-Jazeera America, Fortune, Daily Beast, MSN.com, Newsweek, The Detroit News and Detroit Free Press. The winner of the Society of Professional Journalists award for outstanding reporting, Chapman has had dozens of articles in The New York Times, including two on the coveted front page. She has completed a manuscript about centenarian car enthusiast Margaret Dunning, titled “Belle of the Concours.”
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