Do children hold the key to improved accessibility?
Growing up, I loved the library’s summer reading program. I’ve always been a bookworm, so logging hours of reading and…
Halsey Blocher is a young woman who was diagnosed with SMA Type 1 in 1999 after a blood test revealed a deletion of the survival motor neuron gene. She now lives with her loving family in Fort Wayne, IN and spends her free time reading, cooking, creating, and enjoying life’s blessings. Halsey is passionate about her work as the columns manager at BioNews Inc. as well as volunteering with various local organizations. Writing is her lifelong dream, so she uses this gift to advocate and offer glimpses into everyday life with SMA in the hope that it will inspire readers to seek the positive in every situation
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Growing up, I loved the library’s summer reading program. I’ve always been a bookworm, so logging hours of reading and…
I just turned 26 on Sept. 26, which makes it my golden birthday. Never heard of a golden birthday?…
Our cat, Toby, waltzed into our family over a decade ago for what was intended as a temporary arrangement. She…
On the second Saturday of every August, the setting sun fades and is replaced by the ethereal glow of candlelight.
Who doesn’t love the luxuries and amenities of vacation? Swimming pools, complimentary breakfast, new sights and experiences, and a freshly…
Our family loves vacationing by the sea, and we’ve recently returned from a trip to Roanoke Island,…
Every disabled person, including those with SMA, has likely received the well-intentioned compliment of being told they’re inspirational, but…
It can be fun to let our imaginations run wild with the idea of choosing a superpower. The possibilities are…
People with SMA often have very little privacy. Because we lack the strength to independently complete most activities…
In the late summer of 2021, we took a family vacation to Orlando, Florida. Our resort had an…
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