Halsey Blocher

My feeding tube became a part of my life amid a series of illnesses that required…

As humans, we so often want everything to fit into tidy little boxes with labels that clearly identify the contents.

It’s been nearly two weeks since most of the U.S. “sprang forward” into daylight saving time (DST), and no matter…

I still remember exactly what I was doing when news broke that Evrysdi (risdiplam) had been approved…

It’s hard to say exactly what impact rare disease awareness has had on our world. What has it taught us?…

Who would’ve thought that something as mundane as straws could become a hot topic? Yet in recent years, they’ve been…

Have you ever felt like there could be someone spying on you by listening to your private conversations? Well, perhaps…

One glance at my medical records will very clearly tell you that I’m not exactly healthy. The information contained within…

Last month, I sat at the kitchen table intently wrapping a birthday present as the sunlight began to fade. My…

I tend to attract attention while out in public. It’s not really because I behave in a way that draws…