What a Community Can Accomplish When We Come Together
Back in November, the latest e-newsletter from We Carry Kevan (WCK) landed in my inbox, and this one…
Articles by Halsey Blocher
Loss Is Painful, but the Gift of Friendship Is Worth It
I’m fairly frequently asked what the hardest part of living with SMA is, but no matter how many times…
How Someone Handles My Hands Makes a Difference
My mom and I enjoy treating ourselves to a relaxing afternoon of mother-daughter bonding at the nail salon from time…
Within 3 Years, This Column Has Grown and Changed
Somehow, it’s already been three years since I began sharing my story with you in this column. It’s…
Why Organ Donation Is Important to Me: The Stories of Brad and Jack
After moving into our new home a few months ago, members of our family made a trip…
I’m Hopeful We Won’t Forget What Connected Us During the Pandemic
It’s been about two years since I got a message from a friend saying that she would miss seeing me…
We’re All Rare in Our Own Ways
Whenever my family and I meet new SMA specialists, they’re usually rather perplexed by me. They watch in amazement and…
Accepting My Trach After Grieving My Old Life
I’ve been depending on my tracheostomy tube to supply me with sufficient amounts of oxygen for 11…
Reflections on Disability Representation in Neal Shusterman’s ‘Unwind’
Last year, my grandma excitedly told me about the book her high school students had been assigned for summer reading.
Sharing Our Stories With the SMA Community’s Next Generation
Many years ago, I was sitting in Disney World’s Magic Kingdom waiting for the start of a parade. A few…