Melissa Milinovich is a regular speaker at SMA conferences and uses her social media platforms to educate others about life with SMA. Over the past year, she’s been chronicling her Spinraza journey on her YouTube channel, as well as on Facebook and Twitter. She lives in Amelia, Ohio with her…
If and when the subject of disability and dating arises in popular media, it tends to be oversimplified and filled with gross sentimentality. Films such as the 2016 romantic drama Me Before You, which is based on the novel of the same name, portray the disabled character as a person…
Since starting my full-time position here at SMA News Today, I’ve had the opportunity to take part in several multimedia projects. The podcast I do for this site is one of my favorite parts of my job, as I’m always fascinated to talk with other SMA individuals…
The first part of this series provides information on the seven main forum discussions on SMA News Today, as well as how to make a profile and create posts. In addition to the main forums page, there are also three groups which users can join. Two of these groups…
SMA News Today is proud to present our new forums page. This page is designed to help readers better connect with each other, ask questions and engage with others in the SMA community. We’ve broken up the forums and groups based on specific topics, connections to the SMA community…
For the longest time, I thought New Year’s resolutions were one of the corniest, hokiest, most pointless traditions in our culture. Every year, people set unrealistic goals that they never follow through with, which only leaves everyone feeling disappointed and apathetic by the time March or April rolls…
Hugo Trevino is a prominent spokesperson within the SMA community, and currently works as a resource specialist for the Muscular Dystrophy Association. After completing his undergraduate degree at the University of Illinois, he’s now pursuing a Master’s degree at Loyola University in Chicago. The following is an interview with Hugo,…
The nonprofit organization Living Beyond Boundaries Inc. recently celebrated its one-year anniversary. Based in San Jose, California and founded by Greg Landers, this organization aims to provide things like life coaching and vocational training for people with disabilities all around the world. MORE:Â Online volunteering opportunities for SMA patients…
I was maybe 4 or 5 years old the first time I saw the original “Star Wars” trilogy. It was a VHS set, and I still remember the old-fashioned covers that featured characters like Yoda and Darth Vader. For those of you ultra-millennials out there, VHS tapes are…
In the latest episode of the SMA News Today podcast, Josh Garrison shares his perspective as an Amazon employee who lives with SMA type 2. Garrison is a graduate of the University of Houston with a degree in supply chain management, and has been with Amazon since 2016. He…
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