A family’s journey through the diagnosis and treatment of their baby girl, born with spinal muscular atrophy type 1…
Articles by Marisa Wexler, MS
Among people with spinal muscular atrophy (SMA) and other neuromuscular disorders, participation in adapted sports is associated with greater…
Problems with the secretion of survival signals from muscle cells seems to be the dominant driver of motor neuron loss…
The Muscular Dystrophy Association (MDA) is hosting an online Q&A session today to discuss the best ways that people…
As newborn screening for spinal muscular atrophy (SMA) becomes more common, ethical dilemmas will arise about the best treatment strategy…
Palliative care for babies with spinal muscular atrophy (SMA) type 1 has improved in recent decades, with greater involvement…
Preforming an imaging scan that uses less radiation can be used to plan the administration of Spinraza (nusinersen) in…
Results from a clinical trial of risdiplam in a broad range of people with spinal muscular…
The biopharmaceutical company Cytokinetics and the nonprofit organization Cure SMA have announced a renewal of their partnership. The…
Tina and Torence Anderson’s sixth and youngest child, Malachi, came into the world on July 31, 2015.