Author Archives: Marisa Wexler MS

Too Little Known About Care Needs of Adults with SMA, Study Says

A better understanding of the needs of adults with spinal muscular atrophy (SMA), best ensuring for their mental and social — as well as physical — well-being, is necessary to guide future research, care recommendations, and policy decisions, a review study states. Among its findings was strong support for treatments that…

Taking Part in Adapted Sports Improves Mental Health, Study Finds

Among people with spinal muscular atrophy (SMA) and other neuromuscular disorders, participation in adapted sports is associated with greater self-esteem, lesser depression, and a better quality of life, a study shows. The study, “Psychosocial impact of sport activity in neuromuscular disorders,” was published in Neurological Sciences.

MDA Hosting Online Q&A on COVID-19 Today

The Muscular Dystrophy Association (MDA) is hosting an online Q&A session today to discuss the best ways that people with neuromuscular diseases might protect themselves during the COVID-19 pandemic. The 30-minute session can be accessed on the MDA’s Facebook page, and starts at 6 p.m. EST. People with…

Study Recommends Lower Radiation Dose for Spinraza Scans

Preforming an imaging scan that uses less radiation can be used to plan the administration of Spinraza (nusinersen) in people with spinal muscular atrophy (SMA), without sacrificing confidence in treatment planning, a study shows. The study, “Radiation dose reduction for CT-guided intrathecal nusinersen administration in adult…