6 of the Best Apps for Chronic Illness Management
Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to…
Articles by Wendy Henderson
9 Commonly Asked Questions About Spinraza
Spinraza (Nusinersen) was approved by the FDA in December 2016 for the treatment of children and adults with spinal muscular…
‘Life and Atrophy’: A Documentary About a Young Boy’s Journey With Spinraza
Documentary filmmaker Gareth Burghes first heard of spinal muscular atrophy (SMA) through his father’s work as a geneticist. He soon…
Artist Invents Cool Kid Tool for Wheelchair Painting
In this HuffPost video, artist Dwayne Szot shares his amazing painting invention. Szot wanted children with disabilities to experience…
How Cough-Assist Machines Help With SMA
In this Fight SMA video, Dr. Nanci Yuan talks about the role of cough-assist machines in the treatment of children with spinal…
Spinal Cord Delivery Options for SMA Drugs and Therapies
Many medications and therapies for spinal muscular atrophy (SMA) need to reach the spinal cord to be effective. However, this…
The Importance of Speech-Language Pathologists for Neuromuscular Disorder Patients
Speech-language pathologists (SLPs) or speech-language therapists (SLTs) do much more than help people with speech problems such as stuttering or mispronouncing…
Vaccination Recommendations for People With a Neuromuscular Disease
According to the Muscular Dystrophy Association of New Zealand, there are some vaccinations that all people…
4 People Who Have Something to Say About SMA and MD
The following videos show how people living with muscular dystrophy (MD) and spinal muscular atrophy (SMA) can smash the…
Caring for a Child With SMA When They Have a Cold
According to Cure SMA, there are several areas of care that need to be taken into consideration when…