Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to…
Articles by Wendy Henderson
Spinraza (Nusinersen) was approved by the FDA in December 2016 for the treatment of children and adults with spinal muscular…
Documentary filmmaker Gareth Burghes first heard of spinal muscular atrophy (SMA) through his father’s work as a geneticist. He soon…
In this HuffPost video, artist Dwayne Szot shares his amazing painting invention. Szot wanted children with disabilities to experience…
In this Fight SMA video, Dr. Nanci Yuan talks about the role of cough-assist machines in the treatment of children with spinal…
Many medications and therapies for spinal muscular atrophy (SMA) need to reach the spinal cord to be effective. However, this…
Speech-language pathologists (SLPs) or speech-language therapists (SLTs) do much more than help people with speech problems such as stuttering or mispronouncing…
According to the Muscular Dystrophy Association of New Zealand, there are some vaccinations that all people…
The following videos show how people living with muscular dystrophy (MD) and spinal muscular atrophy (SMA) can smash the…
According to Cure SMA, there are several areas of care that need to be taken into consideration when…