Author Archives: Wendy Henderson

4 People Who Have Something to Say About SMA and MD

The following videos show how people living with muscular dystrophy (MD) and spinal muscular atrophy (SMA) can smash the stereotypes associated with having a disability, and lead rich and full lives. First up is 35-year-old Michael Klinkhamer, who has Becker muscular dystrophy. In this video shared by…

Young Couple Campaign for Pre-Pregnancy Screening of SMA

Young parents Rachael and Jonathan were understandably over the moon after their daughter Mackenzie’s birth but a routine check-up at 10 weeks showed that their little girl was showing signs of floppiness and further testing was required. MORE: Five treatments to help manage SMA  The couple from Sydney, Australia was devastated…

SMA Family Faces Utility Debt

Rising electricity bills in the U.K. have caused one family to get into debt with their utility supplier as they’re caring for a child with spinal muscular atrophy (SMA). MORE: Cure SMA releases its 2017 SMA drug pipeline Maddison from Loughborough, England was diagnosed with SMA type 1 at…

5 Benefits of Cannabis Tea for Chronic Illnesses

Medical marijuana is gaining popularity as a complementary medicine to help with many symptoms associated with chronic illnesses. While many people are curious about how marijuana (or cannabis) may help improve their symptoms, they are also reluctant to smoke the substance. However, there are many ways that medical marijuana can be administered,…

Cure SMA Releases Its 2017 SMA Drug Pipeline

As more and more people affected by SMA gain access to the recently approved Spinraza therapy, Cure SMA has released its pipeline that looks at how research is going in other areas that may benefit the spinal muscular atrophy (SMA) community. MORE: “Life and Atrophy”: A documentary about…