In this video from NBC News, see how a robot is changing the way children with disabilities attend school. MORE: 11 function and mobility aids for children with SMA Maeve has spinal muscular atrophy (SMA), and when she’s too sick to attend class in person,…
Spinal muscular atrophy (SMA) is a genetic disease where, over time, the muscles become weakened. In cases of SMA type 1 and SMA type 2, weakened chest muscles affect the child’s ability to breathe, so you will need to have some items of respiratory equipment in your home so that you…
The following videos show how people living with muscular dystrophy (MD) and spinal muscular atrophy (SMA) can smash the stereotypes associated with having a disability, and lead rich and full lives. First up is 35-year-old Michael Klinkhamer, who has Becker muscular dystrophy. In this video shared by…
Young parents Rachael and Jonathan were understandably over the moon after their daughter Mackenzie’s birth but a routine check-up at 10 weeks showed that their little girl was showing signs of floppiness and further testing was required. MORE: Five treatments to help manage SMA The couple from Sydney, Australia was devastated…
Rising electricity bills in the U.K. have caused one family to get into debt with their utility supplier as they’re caring for a child with spinal muscular atrophy (SMA). MORE: Cure SMA releases its 2017 SMA drug pipeline Maddison from Loughborough, England was diagnosed with SMA type 1 at…
Medical marijuana is gaining popularity as a complementary medicine to help with many symptoms associated with chronic illnesses. While many people are curious about how marijuana (or cannabis) may help improve their symptoms, they are also reluctant to smoke the substance. However, there are many ways that medical marijuana can be administered,…
The following videos show how people living with muscular dystrophy (MD) and spinal muscular atrophy (SMA) can smash the stereotypes associated with having a disability, and lead rich and full lives. First up is 35-year-old Michael Klinkhamer, who has Becker muscular dystrophy. In this video shared by…
August is Spinal Muscular Atrophy (SMA) Awareness Month. To help spread the word about the disease and raise much-needed funds for research into treatments and therapies, Cure SMA has come up with a list of ideas to help you get started: MORE: Caring for a child with SMA when…
As more and more people affected by SMA gain access to the recently approved Spinraza therapy, Cure SMA has released its pipeline that looks at how research is going in other areas that may benefit the spinal muscular atrophy (SMA) community. MORE: “Life and Atrophy”: A documentary about…
The Great Ormond Street Hospital in London, England has teamed up with pharmaceutical giant, Biogen, to offer infants with spinal muscular atrophy (SMA) type 1 treatment using the drug Nusinersen (Spinraza) under their Expanded Access Program until the drug becomes licensed in the U.K. MORE: Five things to consider…
