Author Archives: Wendy Henderson

SMA and Sleep Quality

In this FightSMA video shared in June 2011, meet Dr. Nanci Yuan who is a board certified pediatric pulmonologist and also a sleep medicine physician.  Yuan shares about how poor sleep quality affects children with spinal muscular atrophy and their caregivers. Learn all about the new exoskeleton designed to specifically give children who…

Surfing for SMA

Approximately 1 in 10,000 newborns are affected by spinal muscular atrophy (SMA), a sever life-threatening condition that results in muscle wasting, severely impaired mobility, and shortened life span. Nine-year-old SMA type 2 patient Reagan Imhoff served as a 2015 National Goodwill Ambassador. Read more here. In this heartwarming video shared in…

SMA: Jerika’s Last Dance

https://www.youtube.com/watch?v=jVXjUX4oJ1U Spinal muscular atrophy (SMA) is a genetic disease that affects mostly children. Sadly, SMA leads to shortened life span. The severe neuromuscular disease causes the inability to participate in daily life functions like walking, eating, or even breathing. Nine-year-old SMA Type 2 patient Reagan Imhoff was chosen as the 2015 National Goodwill Ambassador. Read…

Spinal Muscular Atrophy: Reagan’s Hopeful Story

Spinal muscular atrophy (SMA) is a genetic disease that affects mostly children. Sadly, some forms of SMA can lead to short life span. Depending on the type of SMA, the severe neuromuscular disease causes the inability to participate in daily life functions such as walking, eating, or even breathing. Learn…

Spinal Muscular Atrophy Type 3 and Type 4

Spinal muscular atrophy (SMA) is a genetic disease that affects mostly children, but comes in different forms. The severe neuromuscular disease affects a person’s ability to participate in daily life functions, like walking, eating, or even breathing. Read more about spinal muscular atrophy here. In this video shared by…

4 Areas of SMA Management

Approximately one in 10,000 newborns are born with spinal muscular atrophy (SMA), a life threatening condition that results in muscle wasting, severely impaired mobility, and sometimes a shortened life span in severe cases. Currently, SMA is incurable but there are ways to manage the condition and bring comfort to patients. Learn how…

Tom Brady Sends Message to Fan with SMA

https://www.youtube.com/watch?v=jlKiiWVef54 A certain New England Patriots fan was surprised when quarterback Tom Brady took the time to send him a personal message. A new exoskeleton lets children with SMA walk for the first time. Discover more here.  In this video from Hot News, avid Patriots fan Justin Miller received…

Video Explains Faulty Gene in SMA

Approximately 1 in 10,000 newborns are affected by spinal muscular atrophy (SMA), a condition that results in muscle wasting and severely impaired mobility. Meet the Kingsley family and 6-year-old Brett who was diagnosed with spinal muscular atrophy (SMA) type 1 when he was just a baby. In this Roche…