Starting in 2018, newborns in North Carolina will be able to undergo free screenings for genetic diseases. Although babies in America…
Articles by Wendy Henderson
In this inspirational video shared by Stories Lived, 30-year-old Santosh Shriyan and filmmaker Abhijeet Devadiga set out to make their film…
Jack Bolton is a 12-year-old Carolina Panthers super fan. He’s such a big fan that his parents arranged for Jack to be…
This heartwarming video from Make-A-Wish Central & Western NC is all about eight-year-old Jack Bolton, who was diagnosed…
This very moving short film from S Group is about six-month-old Nella. Nella has type 1 spinal muscular atrophy (SMA), a…
https://vimeo.com/140555319 In this video from SOSAVY, 17-year-old Melanie Tran talks about what it’s like living with type 2 spinal…
Physical therapy and rehabilitation programs are vital for the ongoing care of spinal muscular atrophy (SMA) patients. Many of the…
SMARD1 or spinal muscular atrophy with respiratory distress syndrome is a rare genetic motor neuron disorder affecting less than 200,000…
Many people assume that palliative care is just for the terminally ill who only have a few weeks left to…
Often the first sign of spinal muscular atrophy (SMA) is infants failing to meet development milestones such as supporting their…