Newborns in North Carolina to Receive Free Genetic Testing
Starting in 2018, newborns in North Carolina will be able to undergo free screenings for genetic diseases. Although babies in America…
Articles by Wendy Henderson
New Film Encourages People With SMA to Reach Beyond Their Limits
In this inspirational video shared by Stories Lived, 30-year-old Santosh Shriyan and filmmaker Abhijeet Devadiga set out to make their film…
Boy With SMA Gets Tickets for Panthers Playoff Game
Jack Bolton is a 12-year-old Carolina Panthers super fan. He’s such a big fan that his parents arranged for Jack to be…
Boy With SMA Becomes Carolina Panthers’ Coach For a Day
This heartwarming video from Make-A-Wish Central & Western NC is all about eight-year-old Jack Bolton, who was diagnosed…
SMA Stories: Nella
This very moving short film from S Group is about six-month-old Nella. Nella has type 1 spinal muscular atrophy (SMA), a…
SMA and Sport: Reach Beyond Your Limits
https://vimeo.com/140555319 In this video from SOSAVY, 17-year-old Melanie Tran talks about what it’s like living with type 2 spinal…
7 Ways Physical Therapy and Rehabilitation Can Help SMA Patients
Physical therapy and rehabilitation programs are vital for the ongoing care of spinal muscular atrophy (SMA) patients. Many of the…
What is SMARD1?
SMARD1 or spinal muscular atrophy with respiratory distress syndrome is a rare genetic motor neuron disorder affecting less than 200,000…
Spinal Muscular Atrophy: What is Palliative Care?
Many people assume that palliative care is just for the terminally ill who only have a few weeks left to…
3 Diagnostic Tools for Spinal Muscular Atrophy
Often the first sign of spinal muscular atrophy (SMA) is infants failing to meet development milestones such as supporting their…