Wendy Henderson,  —

Wendy is a proven blogger and social media manager who has helped to build online communities for businesses and organizations. She currently heads the website’s social outreach online through social media platforms such as Facebook, Twitter, and Pinterest.

Articles by Wendy Henderson

Challenging the Limits of SMA With Sport

https://vimeo.com/84188930 In this video from Shayne Wilson, shared in 2013, shares a little about the work of the Muscular Dystrophy New South Wales (MDNSW) charity and how their Duke of Edinburgh scheme has helped Melanie Tran to achieve goals she didn’t think possible, such as playing ramp 10-pin bowling.

SMA: Happiness is Always an Option

This inspiring film from FireRock Productions, shared in 2013, is about a 20-year-old student named Shane Burcaw. Shane has spinal muscular atrophy (SMA) and has been in a wheelchair since he was two years old. Find out how a charity helped a teen with SMA become a…

SMA Stories: Dylan

In this video from DNA Learning shared in July 2012, we meet the Cuevas family. Ron and Debbie talk about their children’s understanding of spinal muscular atrophy (SMA). Find out what it’s like to live with a degenerative muscular condition from eight-year-old Jack. The Cuevas have two…

SMA Stories: From Loss to Hope

In this touching video from FightSMA, we meet the Kemp family. Having already suffered the sadness of losing their daughter Madisyn to Type 1 spinal muscular atrophy (SMA) in 2008, Brandon and Patti went on to have three more children. Find out what the three main symptoms of…

10 Key Facts About Spinal Muscular Atrophy

Spinal muscular atrophy (SMA) is a rare genetic disorder where muscles in the body degenerate over time. It is a regressive disease which can, depending on its severity, lead to being unable to walk, talk, swallow and breathe. Here are some key facts about the disease based on information from…

Life and Love With Spinal Muscular Atrophy

In this inspiring video from MDA, we meet Jimmy Valdes and his wife, Julie. Originally from Queens, New York, 47-year-old Jimmy was diagnosed with spinal muscular dystrophy (SMA) in 1971 at two years old. Find out all about AJ Brockman, the digital artist with SMA. Jimmy says…

SMA Couple Talk About Wanting to Start a Family

https://www.youtube.com/watch?v=_viH9zwOhRc Starting a family can be a difficult topic to broach when you have a disability. In this video from Channel 4, we meet Jaz and Kelly. Kelly has spinal muscular atrophy (SMA) and is wheelchair-bound. Discover eight notable people who have spinal muscular atrophy. The couple has…

Living With SMA in Junior High School

This film, directed by Jeremy Ryan Carr and shared in 2013, is about Bryce. Bryce was diagnosed with SMA at the age of 15 months and his parents, Kelly and Dan, were told it was unlikely that Bryce would live beyond his second birthday. Watch the story of…