I was diagnosed with spinal muscular atrophy at nine months of age. No one ever knows what SMA is, so I always say it has something to do with my cells and their ability — or, I suppose, inability — to communicate. My brain tells my body to…
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Recent Posts
- Finding beauty in an ordinary day with SMA
- Wanting to be our baby’s mama, but needing to be his caregiver
- I get to meet my hero at last, and all she wants to talk about is me
- Combined approach improves nerve cell communication in SMA lab study
- Novartis confirms 2 tumor cases appear tied to SMA gene therapy
