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What We Can Learn While Waiting for Coffee

Last week, my mom, brother, and I decided to grab coffee on the way home from picking up groceries. The Starbucks closest to our house has one of the only drive-thrus that can accommodate the towering height of my high-top wheelchair van. Our order was taking longer…

The Challenges of Making Friends as an Adult With SMA

Making friends as an adult is hard. At least, it always has been for me. After all, I’m an introvert. I like keeping to myself. But friendships are important to my emotional well-being, and I cherish them deeply. However, once I graduated from college and started working…

We Choose to Fight for the People Left Behind

Weeks ago, when my friend Sherry and I started brainstorming topics for Disability Pride and SMA Awareness Month, we talked about choice. Specifically the hypothetical kind. In an ideal world, with free healthcare and radical accessibility, would we choose to stay disabled? It’s a question I’ve asked myself numerous…

Honoring the Siblings in an SMA Family

Because our daughter, Katie, and son-in-law, Paul, live over five hours away, we don’t see them often. Thanks to last year’s lockdown, we hadn’t seen them in 10 months when they pulled off a surprise visit for my birthday last May. That long weekend was stuffed with good…