Kevin Schaefer was a cute, spunky, almost-4-year-old when I lucked into a plum friendship with his mama, Cindy. My third baby, Jeffrey, had just been diagnosed with SMA type 1. Kevin, her third child, had a milder form. Cindy and I became fast friends. With three hours’ distance…
Columns
When we think about key moments in our lives, such as weddings and graduations, most of us have a tendency to wonder how things might have turned out differently. We’ll wonder what might have happened if we’d chosen a different career path, pursued a certain relationship, or moved to our…
One might say I was giddy. Once or twice a month, I drive 20 minutes to get shot up with allergens (mold and cat dander, for the curious). So the act itself was mundane. There was nothing special about trekking across the suburbs to my clinic of choice, aka…
I’ve been on my own more than usual lately. The idea feels odd to me when I first greet it, but when I consider the depths of the hourglass accounting for all of my life’s moments so far, I visualize solitude as a dear old friend. Like any classic…
Humans like to believe that progress is linear. We were in the Dark Ages, then we weren’t. We were largely illiterate, then we read so much we created demand for the printing press. We didn’t have smartphones and international access to each other via the internet, and now…
The worst part about long-running sitcoms is when they hit so close to real life. This is especially true when everyone’s favorite characters leave. Think about when Michael left “The Office,” or when Chris and Ann left the town of Pawnee in “Parks and Recreation.” These moments hit…
Anxiety and Apple Orchards Redux
Three years ago, I wrote a column about anxiety and apple orchards. After a long day at an orchard with my caregiver and her daughter, I reflected on something my therapist had said to me: “Can you feel the anxiety and do it anyway?” Three years later, life looks…
I have a fear of falling. It’s not from the great heights of suspension bridges or tall buildings. No, it’s much more humble than that. I fear I will fall off the tiniest exam room table at the gynecologist’s office. And during my recent women’s wellness visit, this was only…
Have you ever been in a deadly serious situation that you looked back on later with humor? Perhaps you’re doing your normal activities and suddenly slip. Or, maybe an object accidentally falls and smacks you in the head. Don’t get me wrong, a slip and a fall or a smack…
According to the World Heart Federation, World Heart Day encourages global participation in activities to improve heart health. The effort to unite people from all walks of life across the world is a worthy one. With endless stressors hurled our way these days, a focus on…
Recent Posts
- SMA effects on development of nervous system worse than thought: Study
- I’m coming up with new ways to manage my pain without complaining
- Higher glial protein levels linked to better response to Spinraza in SMA
- Guest Voice: My one job for cold and flu season is to not get sick
- Finding inspiration in the new year to make a positive impact
