We're Not in Kansas Anymore - a Column by Helen Baldwin

sky, bloom, silence, feathers, timeHelen Baldwin lives in Jefferson, North Carolina, with her husband, Randy plus their two dogs, a cat, and untold wild critters outside. Their firstborn’s family, including two delightful children, lives just down the road, so she enjoys lots of MomMom time. Helen and Randy have a rental cabin and bees, among numerous other endeavors, so they’ll never be bored. Life took a drastic twist in 1997 when their third baby, Jeffrey, was diagnosed with SMA type 1. Although their active stint with SMA was brief, Helen hopes that sharing and connecting experiences after Jeffrey’s death, usually with optimism, helps others endure the unpredictability of loss and recovery.

Why we never take a single breath for granted

Respiratory ailments never bothered my husband, Randy, or me in Fort Worth, Texas, where we grew up. Columbia, South Carolina, our destination in 1985, was wretchedly muggy but didn’t prompt any allergy issues, either. In the early 1990s, we moved to Lenoir, North Carolina, where furniture factories thrived. That would’ve…

Finding good in our rare disease story may not be so rare

This time 27 years ago, I was entering the third trimester of an unplanned pregnancy. My husband, Randy, and I had considered our family complete with two terrific children, Matthew and Katie. God, however, placed a cherry on top of our “fab four” with a big surprise: Jeffrey. Once we…