Embracing My Inner Alien – a column by Kevin Schaefer

December 11, 2018December 7, 2018

Therapy Developments, Gratitude, and Patience

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

A few days ago, I met with an occupational therapist to evaluate the effects of my Spinraza (nusinersen) treatments. So far, I have had six injections of this therapy, and ... Read more

December 4, 2018November 30, 2018

Relying On My Parents More During the Holidays

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

The holidays are when I spend time with family and friends, put off Christmas shopping until the last minute, and relentlessly make fun of Hallmark movies. While it’s true ... Read more

November 27, 2018December 4, 2018

The Most Helpful Technologies I Use

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

Between smartphones, artificial intelligence, and social media platforms that allow people to post cat memes and political ramblings, it often feels like we live in a never-ending episode of ... Read more

November 20, 2018November 19, 2018

My Adventures at the 2018 North Carolina Comicon

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

Recently, I attended one of my favorite events of the year, the North Carolina Comicon. I’ve attended this show for five years in a row, and every staff member, ... Read more

November 13, 2018November 16, 2018

See a Urologist if You Have SMA — Your Kidneys Will Thank You

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

One morning in August 2013, I woke up with a pain unlike anything I had felt before. It was excruciating, relentless, and in my mind, totally unprovoked, as I ... Read more

November 6, 2018November 5, 2018

On Being ‘Cool’ When You’re in a Wheelchair

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

On Halloween this year, I dressed as the Marvel Comics superhero Daredevil. Blind lawyer Matt Murdock by day, and superhuman vigilante by night, Daredevil strikes fear into the hearts ... Read more

October 30, 2018November 8, 2018

SMA Creates Unconventional Sibling Relationships

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

As a kid, I was notorious for dropping my cherished action figures on the floor. Instinctively, I would turn to my older brother Brian to pick them up for ... Read more

October 23, 2018October 22, 2018

Why Humor Is Essential When You Have SMA

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

I went to Barnes & Noble by myself while my mom went to dinner with a friend. I go out unaccompanied quite often, which requires a little extra effort ... Read more

October 16, 2018October 25, 2018

On Turning 25

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

I turn 25 in a few days, which for me is a pretty substantial accomplishment. After four broken legs, two major surgeries, multiple run-ins with pneumonia, a couple of ... Read more

October 9, 2018October 5, 2018

Lessons from My Former Editor

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

At the time of writing this, it’s been one week since the company I work for lost one of its true titans. On Sept. 26, our senior managing columns ... Read more

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