Embracing My Inner Alien - a column by Kevin Schaefer

wheelchair malfunction, movie theaterKevin is a writer, podcaster, and lover of all things pop-culture. Diagnosed with SMA Type 2 at the age of 18 months, he shares a vast array of hilarious and eye-opening stories from his life with a neuromuscular disability. In addition to his weekly columns, he works as the Director of Forums for this site’s parent company, BioNews. Kevin is a graduate of North Carolina State University and lives with his parents in Cary, NC. People regularly mistake him for Tony Stark, on account of his intellect and advanced technological equipment.

 

Milestones Are Different With SMA

I woke up to a Facebook notification inviting me to a group for my high school reunion. It dawned on me that next year will mark a decade since I graduated. Factor in a pandemic, and it feels more like several decades since I crossed the stage in June 2012.

SMA Pride and Disability Language

I was wrapping up a week of vacation when I came upon a flood of posts on my Instagram feed about “SMA Pride Month.” Though August is traditionally recognized as SMA Awareness Month, a group of SMA activists and influencers feel it’s important to rebrand the name. By calling it…

Making Churches More Accessible

“LET ME KNOW IF YOU NEED ANYTHING!” An usher exclaimed these words at the top of his lungs in the church auditorium while putting his hand on my shoulder. To say this experience was patronizing would be an understatement, but it did provide the catalyst for the perfect rebuttal. Upon…

Staying on Top of Everything, or Just Getting By

One of my favorite films is “Rushmore,” a coming-of-age comedy from one of cinema’s most imaginative directors, Wes Anderson. “Rushmore” tells the story of quirky teenager Max Fischer, an ambitious playwright who prioritizes everything but his academics. He joins every…