Embracing My Inner Alien – a column by Kevin Schaefer

April 16, 2019April 12, 2019

Marvel Movies, Day Trips, and Other Alternative Forms of Adventure

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

On Tuesday, April 2, I embarked on a noble quest. At one point, I thought I would need to summon the power of all six infinity stones to accomplish ... Read more

April 9, 2019April 5, 2019

Finding Comfort in the Absurd

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

Between frequent migraines, sleep deprivation, losing significant strength in my arm and upper body, and the universal growing pains of being a teenager, my high school experience came with ... Read more

April 2, 2019March 29, 2019

About that Episode of ‘Dr. Phil’

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

A few weeks ago, reality television host Dr. Phil sparked a major controversy with his statements about interabled relationships. Much like Ken Jennings’s infamous 2014 tweet, a single statement from ... Read more

March 26, 2019March 28, 2019

How Aides in School Prepared Me for Having Caregivers

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

From the time I was in kindergarten to when I graduated high school, I had a full-time aide accompany me to all of my classes. This person helped me ... Read more

March 19, 2019March 15, 2019

SMA Is Part of My Identity, But It Doesn’t Define Me

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

A few days ago, I was talking with my friend Young, a fellow journalist and comic book enthusiast who now writes a column for Charcot-Marie-Tooth News. Ever since we ... Read more

March 12, 2019March 11, 2019

From Homebody to Road Warrior

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

I write a lot about defying the odds and being adventurous despite my disability. I’m not keen on being called an inspiration by people who don’t even know me, but nevertheless, ... Read more

March 5, 2019March 28, 2019

Dealing with My Pulmonary Function Tests

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

As a kid, there were two things I really couldn’t stand: math and pulmonary function tests (PFTs). I was too young and naive to have an angry fanboy mentality ... Read more

February 19, 2019February 25, 2019

Dear Parents: Let Your Kid with SMA Dream Big

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

To any parent who has a child with SMA: Recently, I had a conversation with my caregiver Randy about our goals for the future. We talked about career goals, ... Read more

February 12, 2019February 14, 2019

A Different Kind of Valentine’s Day

Columns, Embracing My Inner Alien - a column by Kevin Schaefer

Full disclosure: I think Leif Erikson Day is far more legitimate than Valentine’s Day. Even though its popularity stems from the fictional universe of “SpongeBob SquarePants,” at least its ... Read more

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