Green Arrow costume, image provided by Kevin Schaefer October is one of my favorite times of the year, and not just because it’s my birthday month. Call me childish, but I never grow tired of the creative Halloween costumes, the festivities, scary movies and the buckets…
Embracing My Inner Alien - a column by Kevin Schaefer
Drivin’ in the Rain
A couple weeks ago I was out with some friends from college for a trivia night at a local brewery. My friend Russ gave me a ride, and as we approached our destination the clouds covered the sky, culminating in a stormy display like something out of…
Never Tell Me the Odds
In a few days I’ll be 24, and every year my birthday is accompanied with at least some sentimentality. I hate being sappy, and anytime I reach a milestone it’s usually followed by an emotional speech by one of my parents. At my college graduation party last…
I’ve been writing this column since April, and while I haven’t shied away from addressing personal topics like adapting to my weakening body and at times feeling burdensome, dating is a subject I’ve steered away from. When I was on a panel at the Cure SMA…
The ABC sitcom Speechless, which premiered in 2016, has been discussed widely among various disability communities since its debut. Beyond the fact that it is about a family whose eldest son has cerebral palsy and uses a wheelchair, the show is not afraid to tackle subjects…
A few weeks ago, I wrote about how my Echo Show from Amazon Alexa has significantly increased my independence, particularly when I’m at home. Recently, my editors here at SMA News Today contacted me about several Echo Dot devices they had to give away…
The other day Facebook reminded me that a year ago I gave stand-up comedy a shot at an open mic night. My local comedy club does open mic sessions every week, and since I have a few comedian friends who had been encouraging me to try it…
Since April, I’ve been writing this weekly column, and I’ve enjoyed every minute of it. Telling my story here on SMA News Today and sharing my thoughts on a wide range of topics has been liberating, rewarding and it has allowed me to connect with others…
Living with SMA or any kind of visible disability means that numerous awkward conversations inevitably will occur. It’s simply one of the things that happens when you’re in a wheelchair, especially when talking with kids or really, really dumb adults. Yet with all the odd comments and questions…
As summer comes to an end and many colleges and grade schools are already in full swing, I’ve been thinking about how I made it through four and a half years of college as someone with SMA. It was far from easy, but it was still one…
Recent Posts
- Daily SMA treatment helps adults with severe disease, study shows
- Counting my blessings during a crisis allows me to weather the storm
- Muscle ultrasound helps assess SMA in children treated with approved drug
- Honoring the proud histories of queer and disabled communities
- SMA gene therapy now approved in Europe to treat patients of all ages
