Like many people, I love to cook. One of my favorite activities at Turnstone’s Adult Day Services program is the monthly cooking class, where I have learned to make all sorts of tasty dishes ranging from homemade peanut butter cups to grilled honey mustard chicken. I’ve also spent many…
From Where I Sit - a Column by Halsey Blocher
The U.S. Food and Drug Administration (FDA) recently announced the approval of Zolgensma (onasemnogene abeparvovec-xioi), the first-ever gene therapy to treat SMA. This amazing news has thrilled the SMA community with its possibilities! Zolgensma opens new doors for increased strength, resistance to illness, and longer lifespans. As…
If you live with a visible disability or illness, then there’s a good chance you’ve experienced a stranger coming up to you and asking to pray for you. As someone who has lived for 21 years with spinal muscular atrophy (SMA) and uses a motorized wheelchair, I have had…
Since the age of 3, I’ve been attending Turnstone, a local organization that runs a center for children and adults with disabilities. Over the years, I’ve benefited from the many services and opportunities at Turnstone, including joining a cheer squad, attending teen socials, and participating in therapy and adult day…
Most people are familiar with the phrase “from where I stand.” The person speaking generally follows it up by sharing their personal perspective on whatever situation is at hand. It is not uncommon for two people to view the same situation in different lights. A variety of things can influence…
Recent Posts
- Guest Voice: Episodes of tachycardia have become my new normal
- SMA advocates share practical tips for work, dating, and travel
- I’ve learned to savor moments of solitude in life with SMA
- When caregivers are strong enough to carry groceries and true friendship
- Study in China supports carrier screening program for SMA
