If I could go back in time a year, to Dec. 31, 2022, and retain what I know now, I’d be so excited about the people who would come into my life in 2023. I’m referring to my new nurses, who have been providing me great care. As I…
Soaring With Hope – a Column by Ari Anderson
In my last column, I wrote about feeling as though I’m turning a page in my life. I want to foster a belief in spiritual hope and share it with others one-on-one. So how else am I turning the page, and how does it relate to hope? Let’s look…
So much of who we are is influenced by our family members. I’m not saying that we have to be exactly like them, and we certainly should do whatever we can to not copy bad behavior. Yet the honorable qualities we see in those close to us have a way…
I’ve written about how I’ve looked for my own nurses to provide my SMA care, but I don’t think I’ve been clear that I’m only assisting my home healthcare agency in its search. Over the past 37 years, I’ve used a few home health agencies and spoken with…
So much of life is about gaining maturity through our experiences. Sometimes we go through events similar to ones we’ve experienced before, but we now understand them from a whole different perspective. A few months ago, I shared here that my back was to the wall. I need night care…
In my previous column, I explained how two years ago I was rescued by a heroic person in my life. Just as my main night nurse of eight years was moving away, a new day nurse of mine agreed to switch to nights. As relieved as I was to…
When my back is to the wall and a crisis is coming to a head, that’s when my life really gets interesting. There are no more long waits to see if something will happen; instead, something has to happen. The way I see it, human intervention usually occurs, but that…
Looking back, I see how I’ve always had an inclination to write a lot. Even in high school 25 years ago, when a test question required me to write a paragraph or two, I would write pages. This was back when I had to use a scribe to write or…
It seems that I have a problem with knowing when to speak up right away and when to wait a brief moment before I say something. In a recent column, I explained how I have feelings of remorse when I say or do something I think was taken the…
If you regularly read what I write, you’ll know that whether you have a rare disease or not, I have similar emotions and thoughts as everyone else. Yet, the medical symptoms I experience from SMA must seem completely foreign to anyone who doesn’t live through it…
Recent Posts
- Blood vessel damage may contribute to nerve cell loss in SMA: Study
- The major life changes that led to our family’s SMA assignment
- I give back — with a little help from my friends
- I have a newfound appreciation for my clinic at Gillette Children’s
- SMA tied to organ-specific redox imbalances in mouse study
