Brianna Albers (she/her) is a crip cyborg storyteller living in Minneapolis-St. Paul. In 2016, she founded Monstering, a magazine for disabled women and nonbinary people. She consults as a patient ambassador for SMA My Way and writes the column “The Wolf Finally Frees Itself” for SMA News Today. She is currently revising THE SAINT AND THE SPIDER, an adult space fantasy with #OwnVoices disability representation. Find her on social media @briehalbers.
I could tell it was going to be a bad day. I woke up to an overdraft notice from my bank, which is never a good sign. Then I realized something was wrong with my phone. I’d updated it the day before, but hadn’t used it since then, so the…
The other day, my friends and I were talking about our mantras for the upcoming year. I usually start thinking about mine sometime in December, so this conversation was par for the course — something about the darkest month of the year makes me yearn for the optimism of…
This year has been unprecedentedly good in terms of media. From season four of “Stranger Things” to the delightfully campy “Our Flag Means Death,” I’ve had no shortage of things to binge. But the highlight has undoubtedly been the renewed interest in “Star Wars.” It started with the six-episode limited…
My life flashed before my eyes. Or, to be more specific, all the meals I’ve eaten in my life flashed before my eyes. I’d determined with complete certainty that I was lactose intolerant. My symptoms aligned perfectly — namely, I experienced gastrointestinal issues after ingesting dairy products. I’d finally identified…
With all due gravity, I informed the group chat about my latest hypothesis. “I think I might be lactose intolerant.” “NO,” said one friend. “NOOOOO,” said another. I explained that I’d been experiencing some strange symptoms around dinnertime. Initially, I assumed it had something to do with Evrysdi (risdiplam),…
It was about a week and a half into the “Dad has COVID-19” saga. Mom and I were surviving in every sense of the term. We’re all introverts, and we all hate change. So you can imagine how very unhappy we all were. We were safe and our basic…
Working with the biotech company Genentech never ceases to amaze me. Back in 2019, when Genentech representatives first reached out to me about an upcoming initiative, I had no idea what to expect. They wanted me to attend a meeting, along with several other people in the SMA…
After two years of tweaking, my new wheelchair is home for good. I think. Most wheelchair users dread new devices. There’s the process of submitting the claim to insurance, which is frankly straight from hell. Then there’s the seating — a monthslong process that involves strangers studying your body…
You know when something is wrong, but you can’t put your finger on what, exactly, that is? The past week has been an exercise in expecting the unexpected. I woke up Wednesday morning to a weeks-early period. “Fine,” I thought. “I’m flexible. I can adapt. This is no big deal.”…
It all started with a little pink pill. I’m allergic to everything under the sun. Thanks to a complex, multistep treatment regimen, I more or less have my allergies under control. But there are days when not even my trusty Mucinex Sinus-Max nasal spray will do the trick. I’m…
