How my technology use has shifted over the years
As my needs with SMA have changed, so have my devices and software
The digital age has transformed how we connect, empowering people like me to engage with the world from anywhere.
My tech obsession ignited around age 14 with the thrill of my first Nintendo DSi. Despite needing creative positioning for myself and my device, I was instantly hooked, often losing myself in games for hours. The since-discontinued iPod Touch became my next digital playground, introducing me to the world of typing and texting. I was utterly captivated.
But my progressive neuromuscular condition, spinal muscular atrophy (SMA), weakened my mobility and muscle strength, making it impossible to continue enjoying my Nintendo DSi and iPod touch. This loss of digital independence was devastating, as television, particularly the Disney Channel, was my only other source of entertainment.
As my condition rapidly worsened in eighth grade, my teacher noticed a marked decline in my ability to keep up with classwork. While I could still write and read physical books, SMA fatigue quickly overwhelmed me, resulting in incomplete assignments. Recognizing my struggles, she initiated the arduous process of securing an assistive technology evaluation through the New York City Department of Education.
After the lengthy approval process, in-depth evaluations began. These involved numerous assessments and trials to determine the best solutions for me. The breakthrough came with an Apple laptop equipped with a wireless Magic Trackpad and a specialized software that’s since been discontinued. This powerful combination enabled me to use an on-screen keyboard and click technology, revolutionizing my computer interaction ability.
This setup sustained me for years, propelling me through primary school and the beginning stages of college and fostering global friendships. However, the physical demands of precise positioning began to take a toll on my right wrist and shoulder. With its increased length and complexity, college coursework exacerbated these issues, forcing me to take frequent breaks and significantly extending how long it took to complete an assignment.
Necessary upgrades
It was clear that my technology needed an upgrade, so I underwent another evaluation through the Office of Vocational Rehabilitation in Pennsylvania. With my diminishing hand function from SMA, eye-tracking systems became the focus.
I explored countless options, each with its specific features. While speech-generating devices were standard, their bulk and robotic nature didn’t appeal to me. Given my ability to speak, I didn’t need a speech-generation device; my primary goal was to find a system that would let me control a computer solely with my eyes while still having a sleek design.
Then I discovered the PCEye, a Tobii Dynavox device that enabled eye control over any Windows computer. Intrigued by its potential, I immediately requested a trial. Within days, I was convinced it was the perfect solution and purchased it.
My Microsoft Surface Pro 8, powered by PCEye technology, has been my gateway to countless accomplishments for the past two years. This incredible tool is a significant reason I’ve pursued this column. Those unfamiliar with my abilities commonly ask, “How do you type?”
My simple, often mind-boggling response: “I use my eyes.”
Eye-tracking technology is a testament to human ingenuity. It offers a lifeline to those with physical limitations and is a powerful reminder that innovation can transform lives.
Note: SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of SMA News Today or its parent company, Bionews, and are intended to spark discussion about issues pertaining to spinal muscular atrophy.
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Comments
Nick Smit
An interesting read. It's awesome to hear about how far technology has come and how it's made a difference in your life.