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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

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      • #20179
        Kevin Schaefer

        Hey everyone! Hope you all are having a great weekend.

        Today’s 31 Days of SMA post, which you can view here, addresses a heavy topic. My friend, Dr. Jim Berry, wrote about losing his eldest son Carson in December of 2018. Carson was a friend of mine, and he had SMA Type II as well. I wrote a column about him earlier this year.

        I know that this is a tough topic, and I was even hesitant when I asked Jim if he’d be willing to write this. I’m glad he agreed though. This post is a reminder to parents, spouses, and families out there who have lost someone to SMA. None of you are alone. Hopefully, you all can find some encouragement and catharsis from Jim’s words. I know I did.

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