Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”
Hey everyone! Hope you all are having a great weekend.
Today’s 31 Days of SMA post, which you can view here, addresses a heavy topic. My friend, Dr. Jim Berry, wrote about losing his eldest son Carson in December of 2018. Carson was a friend of mine, and he had SMA Type II as well. I wrote a column about him earlier this year.
I know that this is a tough topic, and I was even hesitant when I asked Jim if he’d be willing to write this. I’m glad he agreed though. This post is a reminder to parents, spouses, and families out there who have lost someone to SMA. None of you are alone. Hopefully, you all can find some encouragement and catharsis from Jim’s words. I know I did.
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FDA Approves ZOLGENSMA for SMA! Talk about it now — click below:
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