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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.


  • This topic has 1 reply, 1 voice, and was last updated 2 days, 16 hours ago by Alyssa Silva.

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      • #21978
        Kevin Schaefer
        Keymaster

        Hey everyone! Hope you’re all having a great week so far.

        Check out my latest column here. I wrote about a graphic novel I’m currently working on, and how it features a disabled protagonist. It’s been a really fun project to work on, and I share why it’s important for me to tell stories about disability. I’d love to see more examples in the months and years to come.

        Do you have any takeaways from this column? Do you know of any upcoming shows or movies with disabled characters?

      • #21996
        Alyssa Silva
        Keymaster

        I agree that there definitely needs to be more disability representation in the media and I’m glad you’re working to change that! Do you have an idea when your novel will be complete?

        I keep seeing posts on Facebook about that new Netflix series, “The Healing Powers of Dude” which features s girl in a wheelchair! It just came out so I gotta put it on my watch list.

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