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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”

This topic has 1 reply, 1 voice, and was last updated 6 months, 3 weeks ago by Alyssa Silva.

  • Author
    • #21978
      Kevin Schaefer

      Hey everyone! Hope you’re all having a great week so far.

      Check out my latest column here. I wrote about a graphic novel I’m currently working on, and how it features a disabled protagonist. It’s been a really fun project to work on, and I share why it’s important for me to tell stories about disability. I’d love to see more examples in the months and years to come.

      Do you have any takeaways from this column? Do you know of any upcoming shows or movies with disabled characters?

    • #21996
      Alyssa Silva

      I agree that there definitely needs to be more disability representation in the media and I’m glad you’re working to change that! Do you have an idea when your novel will be complete?

      I keep seeing posts on Facebook about that new Netflix series, “The Healing Powers of Dude” which features s girl in a wheelchair! It just came out so I gotta put it on my watch list.

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