Rory and Carolyn met in seminary, fell in love, and got married. They decided to hold off on starting their own family while they settled into their first jobs in North Dakota. After a few years, they moved to Minnesota, where Rory accepted a job as a minister, and Carolyn enrolled in a hospital chaplain residency program. At the time, they did not know how important the decision to move would be for their future family. When they moved, neither North Dakota nor Minnesota had SMA on their newborn screening panel. It wasn’t until March 2018 that Minnesota adopted and implemented newborn screening for SMA, and then several months later, in 2018, Rory and Carolyn’s only son Edan was born.
Today for 31 Days of SMA, we‘re sharing Logan Nantz’s story about her baby’s, Hayden, diagnosis.
Logan’s honesty and poignancy here is a message every newly diagnosed parent should read. Of course, I haven’t been in her shoes. But reading her words and reflecting on the stories my parents have shared about my diagnosis feel eerily similar.
A testament to the fact that words truly resonate with someone in the world, I found myself feeling grateful for Logan sharing her story. Can you relate as well?
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