Today’s 31 Days of SMA features my friend, Shailynn Taylor. Shailynn was diagnosed with SMA type 2 and currently lives in Canada.
Where Shailynn is from, access to treatments like we have in the United States isn’t as easily attainable. Instead, she and her family fundraised for the four loading doses of Spinraza in order for her to get accepted into the JEWLFISH study here in the states. She has now been on Evrysdi for over a year now.
But Shailynn recognizes there’s a fight to be fought when it comes to access to treatment and has set out to advocate for SMA in Canada. I won’t spoil it and let you read it here.
If you’re not in the US, how accessible are treatments in your country?
SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.