• Advocating in Canada

    Posted by alyssa-silva on August 19, 2020 at 4:26 pm

    Today’s 31 Days of SMA features my friend, Shailynn Taylor. Shailynn was diagnosed with SMA type 2 and currently lives in Canada.

    Where Shailynn is from, access to treatments like we have in the United States isn’t as easily attainable. Instead, she and her family fundraised for the four loading doses of Spinraza in order for her to get accepted into the JEWLFISH study here in the states. She has now been on Evrysdi for over a year now.

    But Shailynn recognizes there’s a fight to be fought when it comes to access to treatment and has set out to advocate for SMA in Canada. I won’t spoil it and let you read it here.

    If you’re not in the US, how accessible are treatments in your country?

    alyssa-silva replied 3 years, 10 months ago 1 Member · 0 Replies
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