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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 0 replies, 1 voice, and was last updated 4 months, 4 weeks ago by DeAnn R.

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        DeAnn R
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        Katie details an adventure in her latest column which you can find here. I’ll be adding the Porcupine Mountains to my destination list. Besides telling about the trip Katie makes a connection between the porcupine and living with disability. My takeaway is we can remain humble and kind hearted despite breaking out the quills on occasion to protect ourselves. What is your takeaway? Have you gone on any accessible adventures?

         

        Lessons from the Porcupine Mountains

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