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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 1 reply, 1 voice, and was last updated 5 months, 1 week ago by Halsey Blocher.

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    • #22526
      Alyssa Silva
      Keymaster

      I personally loved last week’s column by Michael Casten. He wrote about his daughter, Ella, being wise beyond her years as a 9-year-old living with SMA. In it, he shared a sweet, sweet story and interaction (I’ll let you read it for yourself) between Ella and her mom and went on to use this as an example of how her attitude makes all the difference.

      Sometimes, I wonder if growing up with SMA forced us— without even realizing— to mature faster than kids our age. Would you agree?

    • #22589
      Halsey Blocher
      Participant

      I definitely think that’s a possibility. I was always a very mature child, and it’s a trait I often notice in other children with SMA.

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