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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

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        Kevin Schaefer

        Hey everyone! Hope you’re all having a great week so far.

        I had a pretty hectic day yesterday, but my Spinraza injection went well. Plus, my JACO robotic arm is finally working again! That’s a long story which you can read about in an upcoming column.

        For now, check out this week’s column. I wrote about Keah Brown’s new memoir “The Pretty One.” Keah is a disability rights activist and pop-culture guru. This book explores disability as identity, intersectionality, and disability representation. I highly recommend this book to everyone here.

        Has anyone here read this book? Are you familiar with Keah’s #disabledandcute hashtag?

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