Every day, I watch from the sidelines as people go about their lives. Meanwhile, I surf the internet. I write my book. I schedule appointments and wonder, idly, if my headaches are symptomatic of something else.
I totally feel this. I’m working full-time from home (I’m supposed to be working right now lol) but I still feel like this often. I just work day in and day out, handle all of the SMA stuff, and use what little energy I have left to throw into my personal projects. I wonder how long this can go on. I wonder what I will do in the future. I wonder how I will ever be able to date if I never leave my house. I call it the “tangible world.” It’s right there all around us but for those of us with SMA it somehow seems to get further and further away.