Columnist Writes How SMA Strengthens the Heart
Hey everyone. I wrote my latest column about something my mother once said about SMA. She was speaking out to a crowd of hundreds at my nonprofit organization’s annual gala, and the love in that room was palpable that night. She said, “SMA may weaken the muscles but it strengthens the heart.”
I’ve cherished those words greatly ever since as they came during a dark period of my life. My body had been slipping, and I was beginning to truly resent my disease. I wrote all about it here, but those words felt like I was coming up for air after almost drowning. So, they hold a special place in my heart.
Ever felt that way? Like you just don’t have it in you to accept SMA and you begin to actually hate it? What has helped you keep your head above water?