Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”
It’s been so much fun putting faces with familiar names. Thanks for joining in on the adult social hours through the Cure SMA conference the last couple of days. We’ve had a blast getting to know each other and catching up with who we’ve already met. One session remains tonight at 7 p.m. central time, so if you haven’t joined in (or even if you have) I encourage you to do so. I promise it’s not scary. In fact it was my first time participating in something like this. To register for the event click here. After you register you will be sent a link to join the Zoom gathering. Since there are so many participants, we’re split into breakout rooms of smaller groups that swap a few times throughout the evening. You can be as talkative as you’d like, or if you prefer being a wallflower that’s fine too.
SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.