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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

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      • #13964
        Kevin Schaefer

        I met the author of this article at a conference about a year and a half ago, and she does a great job talking about the importance of getting involved as a student https://smanewstoday.com/2018/09/01/school-with-sma-sponsored-post/?amp. Angie writes about her high school experiences here, but I believe her points here apply to college life as well.

        The biggest point she makes here is that if we want to be treated normally in academic or work settings, we have to put ourselves out there and engage with others. I started off my high school days on a great note by talking with people around me, both students in my class and upperclassmen. I also joined clubs and became active from day one. Sure there were awkward times as well as good ones, but my school experiences were always greatly enhanced by participating in student life. No matter what stage of life you’re in, getting involved in something and finding that community goes a long way.

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