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The importance of newborn screening for SMA

Rory and Carolyn met in seminary, fell in love, and got married. They decided to hold off on starting their own family while they settled into their first jobs in North Dakota. After a few years, they moved to Minnesota, where Rory accepted a job as a minister, and Carolyn enrolled in a hospital chaplain residency program. At the time, they did not know how important the decision to move would be for their future family. When they moved, neither North Dakota nor Minnesota had SMA on their newborn screening panel. It wasn’t until March 2018 that Minnesota adopted and implemented newborn screening for SMA, and then several months later, in 2018, Rory and Carolyn’s only son Edan was born.

This topic has 0 replies, 1 voice, and was last updated 2 years, 7 months ago by Michael Nace.

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      Michael Nace

      Welcome to the SMA News Today forums! This “Welcome Lounge” is a great place to introduce yourself, talk about your journey in living with SMA or caring for a loved one with the disease, and let us know what you’re interested in talking about. Our forums are filled with a wide range of people who are connected to SMA in one way or another, so there are a lot of unique and diverse voices here to engage and converse with.

      Be sure to first register — you can do that in the sidebar to the right, either with e-mail or your Facebook account. From there, feel free to post a new topic in the Welcome Lounge, or simply reply to this topic. Either way, we’re looking forward to hearing from you!

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