Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”
If you follow me on social media, you’ll probably have noticed that I can’t shut up about SMA My Way. I’ve been working with Genentech since early this year, and we’re finally ready for the big reveal.
SMA My Way is sponsored by Genentech and is a collaboration with the community to benefit all people with SMA. We’ll be rolling out all sorts of content, but for right now, you can check out the splash page here. Alex from Wheelchair Rapunzel, Kevan from We Carry Kevan, and Shane and Hannah from Squirmy and Grubs have been working hard, and we’re so excited for what’s to come!
This is really so exciting, and I’m so glad you can finally share it! I know the secrecy has been driving you crazy! I don’t have any specific ideas off the top of my head, but if there’s any way I can help, please shoot me a message! I think it’s a really great initiative and I’m looking forward to seeing where it goes from here!
SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.