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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


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      Kevin Schaefer
      Keymaster

      Hey everyone! Hope you all had a safe and relaxing weekend.

      So, July is Disability Pride Month! The month coincides with the anniversary of the Americans with Disabilities Act of 1990. This is a time to celebrate people with disabilities, and to advocate for a more inclusive world. You can read more about it here.

      I write and talk about inclusion regularly. One of my core philosophies is to show society that we’re more than capable of contributing to it. Just listen to the dozens of stories on the podcast here.

      What does disability pride mean to you? Do you participate in any sort of advocacy groups or events?

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