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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

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      • #21281
        Kevin Schaefer

        Hey everyone! Hope you all had a great weekend.

        For today’s Motivation Monday topic, check out this article from the MDA Quest magazine. The author is a woman with SMA, and a few years ago she and her husband adopted a child who also has SMA. She writes about the unique relationship she and her son have, and how others perceive it.

        While this writer wasn’t worried about parenting a child with a disability, she still has to deal with stereotypes. This line really stuck out to me: “Ours is a story of love and adoption and beauty where others see tragedy.” It bugs me that people still have this backwards mindset. I’ve talked with parents who have SMA, and they say that dealing with these stigmas is the hardest part.

        Personally, I’m not really planning on having kids, but I’m fascinated to read stories like this one. I love this writer’s perspective, and I think we can glean a lot about motivation from her story.

        Do you have any takeaways from this story? Do any parents have any thoughts?

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