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    Celebrating “Inchstones” in SMA

    A mother’s perspective: How our family measures progress since treatment

    You couldn’t picture a happier or more beautiful little boy than the one who came into our lives on January 4, 2019. Little did we know, this bundle of joy we named Slade was just starting a journey that was going to change our family’s life.

    About 2 weeks after Slade was born we started to notice that he appeared to be a bit floppy. Our pediatrician chalked it up to him being a calm baby and told us he’d eventually grow out of it. With my husband being a chiropractor and my background in early childhood development, we knew something was wrong–we could just feel it.

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      • #22242
        Brianna Albers

        Hey, all! Happy Friday!

        I wanted to share this really neat opportunity with y’all. Shane and Hannah recently found out that a pilot for NBC is currently in development. The pilot is about a parent-child duo. The child is around 9 years old and has SMA. The writer has a child with SMA and is hoping to cast an actual disabled actor — a huge win for disability representation!

        If you’re interested, check out Shane and Hannah’s video. They go into further detail about the opportunity and the next steps.

        What do you think of this news?

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