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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


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    • #22242
      Brianna Albers
      Keymaster

      Hey, all! Happy Friday!

      I wanted to share this really neat opportunity with y’all. Shane and Hannah recently found out that a pilot for NBC is currently in development. The pilot is about a parent-child duo. The child is around 9 years old and has SMA. The writer has a child with SMA and is hoping to cast an actual disabled actor — a huge win for disability representation!

      If you’re interested, check out Shane and Hannah’s video. They go into further detail about the opportunity and the next steps.

      What do you think of this news?

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