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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”

This topic has 0 replies, 1 voice, and was last updated 10 months ago by Kevin Schaefer.

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    • #20990
      Kevin Schaefer

      Happy Friday everyone!

      So I’m curious. Now that Zolgensma is FDA-approved, who here is pursuing this treatment for your child/children? Have you had success? I’m still content with Spinraza, but I was curious what it’s like to pursue this treatment.

      Hope you all have a great weekend!

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