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	<title>SMA News Today Forums | holly-dillon | Activity</title>
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				<title>holly-dillon started the discussion SMA with ADHD in the forum Adults ​With​ ​SMA</title>
				<link>https://smanewstoday.com/forums/forums/topic/sma-with-adhd/</link>
				<pubDate>Thu, 22 Feb 2024 21:26:16 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/sma-with-adhd/">SMA with ADHD</a></p> <div class="bb-content-inr-wrap"><p>is anyone else adhd? i wasn&#8217;t diagnosed until after high school. i guess no one noticed because of my physical problems. managing life with sma is hard enough but this feels impossible.</p>
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				<title>holly-dillon replied to the discussion Irritated Pits in the forum Adults ​With​ ​SMA</title>
				<link>https://smanewstoday.com/forums/forums/topic/irritated-pits/#post-29335</link>
				<pubDate>Tue, 05 Apr 2022 22:44:14 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/irritated-pits/#post-29335"><span class="bb-reply-lable">Reply to</span> Irritated Pits</a></p> <div class="bb-content-inr-wrap"><p>tried using fingers to apply it instead of the stick? naked deodorant works good for sensitive skin.</p>
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				<title>holly-dillon replied to the discussion Where are you from? in the forum Adults ​With​ ​SMA</title>
				<link>https://smanewstoday.com/forums/forums/topic/where-are-you-from/#post-29296</link>
				<pubDate>Sat, 26 Mar 2022 23:56:33 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/where-are-you-from/#post-29296"><span class="bb-reply-lable">Reply to</span> Where are you from?</a></p> <div class="bb-content-inr-wrap"><p>i&#8217;m from virginia in the blue ridge mountains</p>
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				<title>holly-dillon replied to the discussion Medical Marijuana in the forum Adults ​With​ ​SMA</title>
				<link>https://smanewstoday.com/forums/forums/topic/medical-marijuana/#post-29211</link>
				<pubDate>Wed, 09 Mar 2022 16:01:37 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/medical-marijuana/#post-29211"><span class="bb-reply-lable">Reply to</span> Medical Marijuana</a></p> <div class="bb-content-inr-wrap"><p>you won&#8217;t feel a thing on edibles, but don&#8217;t take one if you have plans later.</p>
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				<title>holly-dillon replied to the discussion Hand Falling Off Joystick in the forum Assistive Technology</title>
				<link>https://smanewstoday.com/forums/forums/topic/hand-falling-off-joystick/#post-28122</link>
				<pubDate>Thu, 30 Sep 2021 00:46:03 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/hand-falling-off-joystick/#post-28122"><span class="bb-reply-lable">Reply to</span> Hand Falling Off Joystick</a></p> <div class="bb-content-inr-wrap"><p>my joystick is shaped like goal post. that really helped.</p>
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				<title>holly-dillon replied to the discussion Let’s get to know each other! in the forum Adults ​With​ ​SMA</title>
				<link>https://smanewstoday.com/forums/forums/topic/lets-get-to-know-each-other/#post-27272</link>
				<pubDate>Thu, 10 Jun 2021 18:38:21 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/lets-get-to-know-each-other/#post-27272"><span class="bb-reply-lable">Reply to</span> Let’s get to know each other!</a></p> <div class="bb-content-inr-wrap"><p>1. Virginia, US</p>
<p>2. 23 but i turn 24 in exactly a week. i have a mutated gene. the condition doesn&#8217;t have a name because its newly discovered.</p>
<p>3. i love that being disabled has given me a community a an identity that has given me a unique world view</p>
<p>4. dogs. parrots weren&#8217;t an option but there awesome too.</p>
<p>5. anything having to do with nature</p>
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				<title>holly-dillon replied to the discussion Jaco Denial #2 in the forum Assistive Technology</title>
				<link>https://smanewstoday.com/forums/forums/topic/jaco-denial-2/#post-26724</link>
				<pubDate>Sat, 08 May 2021 19:06:59 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/jaco-denial-2/#post-26724"><span class="bb-reply-lable">Reply to</span> Jaco Denial #2</a></p> <div class="bb-content-inr-wrap"><p>they told me no because it &#8220;wouldn&#8217;t make me better&#8221;</p>
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				<title>holly-dillon replied to the discussion Difficulty Remembering the Past in the forum Adults ​With​ ​SMA</title>
				<link>https://smanewstoday.com/forums/forums/topic/difficulty-remembering-the-past/#post-26690</link>
				<pubDate>Wed, 05 May 2021 17:53:06 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/difficulty-remembering-the-past/#post-26690"><span class="bb-reply-lable">Reply to</span> Difficulty Remembering the Past</a></p> <div class="bb-content-inr-wrap"><p>the same thing happened to me. i thought it was because of surgical complications but sometimes it feels like the memories are there and it just hurts to remember.</p>
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				<title>holly-dillon replied to the discussion The Disability Concept in the forum Adults ​With​ ​SMA</title>
				<link>https://smanewstoday.com/forums/forums/topic/the-disability-concept/#post-25601</link>
				<pubDate>Sat, 19 Dec 2020 23:02:00 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/the-disability-concept/#post-25601"><span class="bb-reply-lable">Reply to</span> The Disability Concept</a></p> <div class="bb-content-inr-wrap"><p>i agree with ariana. i have an identity and a culture that Is unique to those around me. its also made me pay more attention to social issues and i feel like i&#8217;m a better person because of it.</p>
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				<title>Holly changed their profile picture</title>
				<link>https://smanewstoday.com/forums/activity/p/11681/</link>
				<pubDate>Mon, 02 Nov 2020 17:13:03 -0600</pubDate>

				
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				<title>holly-dillon started the discussion phone mount recommendations in the forum Adults ​With​ ​SMA</title>
				<link>https://smanewstoday.com/forums/forums/topic/phone-mount-recommendations/</link>
				<pubDate>Mon, 02 Nov 2020 17:11:37 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/phone-mount-recommendations/">phone mount recommendations</a></p> <div class="bb-content-inr-wrap"><p>i&#8217;m looking for a new wheelchair phone mount, one thats easy to take off and put back on, bonus if I can attach it to my bed. any recommendations?</p>
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				<title>holly-dillon replied to the discussion Keeping your feet warm in the forum Adults ​With​ ​SMA</title>
				<link>https://smanewstoday.com/forums/forums/topic/keeping-your-feet-warm/#post-25132</link>
				<pubDate>Sat, 24 Oct 2020 00:52:38 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/keeping-your-feet-warm/#post-25132"><span class="bb-reply-lable">Reply to</span> Keeping your feet warm</a></p> <div class="bb-content-inr-wrap"><p>Dennis, have you tried billy footwear</p>
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				<title>holly-dillon replied to the discussion SMA Patients of Color? in the forum Raising Awareness of SMA</title>
				<link>https://smanewstoday.com/forums/forums/topic/sma-patients-of-color/#post-23811</link>
				<pubDate>Fri, 05 Jun 2020 19:34:35 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/sma-patients-of-color/#post-23811"><span class="bb-reply-lable">Reply to</span> SMA Patients of Color?</a></p> <div class="bb-content-inr-wrap"><p>here are two girls</p>
<p><a target='_blank' href="https://www.instagram.com/nolimitsg2/?hl=en" rel="nofollow">https://www.instagram.com/nolimitsg2/?hl=en</a></p>
<p><a target='_blank' href="https://www.instagram.com/stella_lacaps/?hl=en" rel="nofollow">https://www.instagram.com/stella_lacaps/?hl=en</a></p>
<p>Seriously though why are disabled poc so hard to find on instagram. it makes me a little suspicious.</p>
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				<title>holly-dillon replied to the discussion States Reopening: What’s Your Take? in the forum COVID-19 and SMA</title>
				<link>https://smanewstoday.com/forums/forums/topic/states-reopening-whats-your-take/#post-23498</link>
				<pubDate>Tue, 12 May 2020 00:33:47 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/states-reopening-whats-your-take/#post-23498"><span class="bb-reply-lable">Reply to</span> States Reopening: What’s Your Take?</a></p> <div class="bb-content-inr-wrap"><p>I don’t know if I&#8217;ll wait for the vaccine, but I’m not going out any time soon</p>
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				<title>holly-dillon replied to the discussion Looking for Books By Disabled Writers in the forum Disability in Media</title>
				<link>https://smanewstoday.com/forums/forums/topic/looking-for-books-by-disabled-writers/#post-23473</link>
				<pubDate>Sat, 09 May 2020 00:18:46 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/looking-for-books-by-disabled-writers/#post-23473"><span class="bb-reply-lable">Reply to</span> Looking for Books By Disabled Writers</a></p> <div class="bb-content-inr-wrap"><p>sorry forget one<br />
The Girl From Aleppo, its a memoir from Nujeen Mustafa, a girl with cerebral palsy, who fled Syrian  war in a wheelchair</p>
<p>bonus: Just The Way You Arm by Alison M Boot, I have not read it yet. It seems to be a fantasy romance. I don&#8217;t know if its good or not.</p>
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				<title>holly-dillon replied to the discussion Looking for Books By Disabled Writers in the forum Disability in Media</title>
				<link>https://smanewstoday.com/forums/forums/topic/looking-for-books-by-disabled-writers/#post-23470</link>
				<pubDate>Fri, 08 May 2020 17:07:20 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/looking-for-books-by-disabled-writers/#post-23470"><span class="bb-reply-lable">Reply to</span> Looking for Books By Disabled Writers</a></p> <div class="bb-content-inr-wrap"><p>This Is Not A love Scene by S.C. Megale both the author and the main character have SMA</p>
<p>Accidents of Nature, which takes place at a disabled summer camp by Harriet McBryde Johnson, a notable disability rights activist</p>
<p>Good King Bad Kings by Susan Nussbaum, another activist, about a nursing home for disabled kids (kinda dark)</p>
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				<title>holly-dillon replied to the discussion Jaco or IARM in the forum Assistive Technology</title>
				<link>https://smanewstoday.com/forums/forums/topic/jaco-or-iarm/#post-23328</link>
				<pubDate>Mon, 27 Apr 2020 20:12:43 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/jaco-or-iarm/#post-23328"><span class="bb-reply-lable">Reply to</span> Jaco or IARM</a></p> <div class="bb-content-inr-wrap"><p>They’ve contacted me back. I&#8217;m going to pursue it further. It might be a bit cheaper.</p>
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				<title>holly-dillon started the discussion Jaco or IARM in the forum Assistive Technology</title>
				<link>https://smanewstoday.com/forums/forums/topic/jaco-or-iarm/</link>
				<pubDate>Sat, 18 Apr 2020 00:49:00 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/jaco-or-iarm/">Jaco or IARM</a></p> <div class="bb-content-inr-wrap"><p>Hi, a lot of y&#8217;all have tried Jaco right? Has anyone looked in into the IARM?</p>
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				<title>holly-dillon replied to the discussion Ryan’s Robotics Episode 3: How I Acquired My JACO Robotic Arm in the forum SMA News Today&#039;s YouTube</title>
				<link>https://smanewstoday.com/forums/forums/topic/ryans-robotics-episode-3-how-i-acquired-my-jaco-robotic-arm/#post-23069</link>
				<pubDate>Mon, 13 Apr 2020 14:25:23 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/ryans-robotics-episode-3-how-i-acquired-my-jaco-robotic-arm/#post-23069"><span class="bb-reply-lable">Reply to</span> Ryan’s Robotics Episode 3: How I Acquired My JACO Robotic Arm</a></p> <div class="bb-content-inr-wrap"><p>What about SSI and medicaid, how didn’t you loose benefits with fundraising</p>
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				<title>holly-dillon replied to the discussion Ryan’s Robotics Episode 3: How I Acquired My JACO Robotic Arm in the forum SMA News Today&#039;s YouTube</title>
				<link>https://smanewstoday.com/forums/forums/topic/ryans-robotics-episode-3-how-i-acquired-my-jaco-robotic-arm/#post-23058</link>
				<pubDate>Fri, 10 Apr 2020 17:36:41 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/ryans-robotics-episode-3-how-i-acquired-my-jaco-robotic-arm/#post-23058"><span class="bb-reply-lable">Reply to</span> Ryan’s Robotics Episode 3: How I Acquired My JACO Robotic Arm</a></p> <div class="bb-content-inr-wrap"><p>did y’all have to go through a dealer too?</p>
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				<title>holly-dillon replied to the discussion Ryan’s Robotics Episode 3: How I Acquired My JACO Robotic Arm in the forum SMA News Today&#039;s YouTube</title>
				<link>https://smanewstoday.com/forums/forums/topic/ryans-robotics-episode-3-how-i-acquired-my-jaco-robotic-arm/#post-23047</link>
				<pubDate>Thu, 09 Apr 2020 20:39:44 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/ryans-robotics-episode-3-how-i-acquired-my-jaco-robotic-arm/#post-23047"><span class="bb-reply-lable">Reply to</span> Ryan’s Robotics Episode 3: How I Acquired My JACO Robotic Arm</a></p> <div class="bb-content-inr-wrap"><p>How did you get it for 53,000? When I tried it was 80,000</p>
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				<title>holly-dillon became a registered member</title>
				<link>https://smanewstoday.com/forums/activity/p/7592/</link>
				<pubDate>Mon, 28 Oct 2019 18:17:46 -0500</pubDate>

				
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				<title>holly-dillon updated their profile</title>
				<link>https://smanewstoday.com/forums/activity/p/7591/</link>
				<pubDate>Mon, 28 Oct 2019 18:13:09 -0500</pubDate>

				
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