SMA Patients of Color?

Tagged: Adults With SMA, diversity, media representation, people of color, social media

This topic has 7 replies, 7 voices, and was last updated 3 weeks, 6 days ago by Kevin Schaefer.

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- June 5, 2020 at 7:00 am #23795
  
  Brianna Albers
  Keymaster
  
  To diversify my social feeds, I’m looking for SMA patients of color — or disability advocates of color — that are active on social media. Who do you follow? Who would you recommend? Let’s start an appreciation train and spread the SMA love!
- June 5, 2020 at 7:52 am #23802
  
  Rachel Markley
  Participant
  
  Following! None I know are active.
- June 5, 2020 at 8:43 am #23803
  
  Júlia Ayerbe
  Participant
  
  Hi Brianna,
  
  There is Jillian Mercado, I don´t know if you already known her 🙂 https://www.instagram.com/jillianmercado/
- June 5, 2020 at 9:51 am #23808
  
  Alyssa Silva
  Keymaster
  
  I’m not sure of any with SMA, but I just came across this Instagram post that shares some black disability advocates to follow.
- June 5, 2020 at 2:34 pm #23811
  
  Holly
  Participant
  
  here are two girls
  
  https://www.instagram.com/nolimitsg2/?hl=en
  
  https://www.instagram.com/stella_lacaps/?hl=en
  
  Seriously though why are disabled poc so hard to find on instagram. it makes me a little suspicious.
- June 5, 2020 at 5:18 pm #23814
  Crystal
  Participant
  I don’t know any of SMA but I love watching Sitting Pretty Lolo on YouTube. I think I found her Instagram but I don’t know. I don’t have Instagram. Lol. She has als.
  
  https://www.google.com/url?sa=t&source=web&rct=j&url=https://www.instagram.com/itslololove/%3Fhl%3Den&ved=2ahUKEwi0io3P2evpAhWGVc0KHTohD8oQFjAXegQIAhAB&usg=AOvVaw0QX6HustG52gBqsyskhMAL
  - This reply was modified 4 weeks, 1 day ago by Crystal.
- June 7, 2020 at 4:21 pm #23822
  
  Kevin Schaefer
  Keymaster
  
  We’ve featured George Corbin on our Instagram page before, and I’m interviewing him for the next podcast episode. Follow him here.
  
  Great topic!
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