SMA Patients of Color? - Raising Awareness of SMA - SMA News Today Forums

Tagged: Adults With SMA, diversity, media representation, people of color, social media

Raising Awareness of SMA

SMA Patients of Color?

Posted by brianna-albers on June 5, 2020 at 7:00 am

To diversify my social feeds, I’m looking for SMA patients of color — or disability advocates of color — that are active on social media. Who do you follow? Who would you recommend? Let’s start an appreciation train and spread the SMA love!

kevin-schaefer replied 4 years, 7 months ago 7 Members · 6 Replies
6 Replies

rachel-markley

Member
June 5, 2020 at 7:52 am

Following! None I know are active.
julia-ayerbe

Member
June 5, 2020 at 8:43 am

Hi Brianna,

There is Jillian Mercado, I don´t know if you already known her 🙂 https://www.instagram.com/jillianmercado/
alyssa-silva

Member
June 5, 2020 at 9:51 am

I’m not sure of any with SMA, but I just came across this Instagram post that shares some black disability advocates to follow.
holly-dillon

Member
June 5, 2020 at 2:34 pm

here are two girls

https://www.instagram.com/nolimitsg2/?hl=en

https://www.instagram.com/stella_lacaps/?hl=en

Seriously though why are disabled poc so hard to find on instagram. it makes me a little suspicious.
survivinglife

Member
June 5, 2020 at 5:18 pm

I don’t know any of SMA but I love watching Sitting Pretty Lolo on YouTube. I think I found her Instagram but I don’t know. I don’t have Instagram. Lol. She has als.

https://www.google.com/url?sa=t&source=web&rct=j&url=https://www.instagram.com/itslololove/%3Fhl%3Den&ved=2ahUKEwi0io3P2evpAhWGVc0KHTohD8oQFjAXegQIAhAB&usg=AOvVaw0QX6HustG52gBqsyskhMAL
kevin-schaefer

Member
June 7, 2020 at 4:21 pm

We’ve featured George Corbin on our Instagram page before, and I’m interviewing him for the next podcast episode. Follow him here.

Great topic!

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