• News
  • Forums
  • Members
  • Activity
  • About
    Log In Register
    • Log In
    • Register
    • Forums
    • Members
    • Media
      • Photos
      • Videos
    • Activity
    • About Our Forums

    SMA News Forums › Forums › Awareness and Advocacy › Raising Awareness of SMA › SMA Patients of Color?

    Tagged: Adults With SMA, diversity, media representation, people of color, social media

    • Raising Awareness of SMA

      SMA Patients of Color?

      Posted by brianna-albers on June 5, 2020 at 7:00 am

      To diversify my social feeds, I’m looking for SMA patients of color — or disability advocates of color — that are active on social media. Who do you follow? Who would you recommend? Let’s start an appreciation train and spread the SMA love!

      kevin-schaefer replied 3 years, 5 months ago 7 Members · 6 Replies
      • Adults With SMA
      • diversity
      • media representation
      • people of color
      • social media
    • 6 Replies
    • rachel-markley

      Member
      June 5, 2020 at 7:52 am

      Following! None I know are active.

    • julia-ayerbe

      Member
      June 5, 2020 at 8:43 am

      Hi Brianna,

      There is Jillian Mercado, I don´t know if you already known her 🙂 https://www.instagram.com/jillianmercado/

    • alyssa-silva

      Member
      June 5, 2020 at 9:51 am

      I’m not sure of any with SMA, but I just came across this Instagram post that shares some black disability advocates to follow.

    • holly-dillon

      Member
      June 5, 2020 at 2:34 pm

      here are two girls

      https://www.instagram.com/nolimitsg2/?hl=en

      https://www.instagram.com/stella_lacaps/?hl=en

      Seriously though why are disabled poc so hard to find on instagram. it makes me a little suspicious.

    • survivinglife

      Member
      June 5, 2020 at 5:18 pm

      I don’t know any of SMA but I love watching Sitting Pretty Lolo on YouTube. I think I found her Instagram but I don’t know. I don’t have Instagram. Lol. She has als.

      https://www.google.com/url?sa=t&source=web&rct=j&url=https://www.instagram.com/itslololove/%3Fhl%3Den&ved=2ahUKEwi0io3P2evpAhWGVc0KHTohD8oQFjAXegQIAhAB&usg=AOvVaw0QX6HustG52gBqsyskhMAL

    • kevin-schaefer

      Member
      June 7, 2020 at 4:21 pm

      We’ve featured George Corbin on our Instagram page before, and I’m interviewing him for the next podcast episode. Follow him here.

      Great topic!

    Log In to Reply

    • Public
    • All Members
    • My Connections
    • Only Me
    • Public
    • All Members
    • My Connections
    • Only Me
    • Public
    • All Members
    • My Connections
    • Only Me

    Log In to Reply

    Start of Discussion
    0 of 0 replies June 2018
    Now

    Log In

    Log In

    Forgot Password?

    Register Lost Password

    Search Forums

    Who’s Online

    Online 0
    There are no users currently online

    Members

    Newest | Active | Popular
    • Profile photo of susana-m
      susana-m
      active 2 minutes ago
    • Profile photo of rahul
      rahul
      active 18 minutes ago
    • Profile photo of micaela-macdougall
      micaela-macdougall
      active an hour ago
    • Profile photo of deann-r
      deann-r
      active 3 hours ago
    • Profile photo of poindexter
      poindexter
      active 5 hours ago
    See all

    BioNews Logo

    BioNews, Inc.

    3 W Garden St
    Suite 700
    Pensacola, FL 32502
    Website: bionews.com
    Email: [email protected]
    Phone: 1-800-936-1363

    • Email Forum Support
    • Publishing Team
    • Leadership
    • Our Culture
    • Corrections Policy
    • Terms of Service
    • Privacy Policy
    • Careers
    • Contact Us
    • Advertising Policy

    Disclaimer

    This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

    Copyright © 2017 - 2023 - All Rights Reserved.

    Report

    There was a problem reporting this post.

    Harassment or bullying behavior
    Contains mature or sensitive content
    Contains misleading or false information
    Contains abusive or derogatory content
    Contains spam, fake content or potential malware

    Block Member?

    Please confirm you want to block this member.

    You will no longer be able to:

    • See blocked member's posts
    • Mention this member in posts
    • Invite this member to groups
    • Message this member
    • Add this member as a connection

    Please note: This action will also remove this member from your connections and send a report to the site admin. Please allow a few minutes for this process to complete.

    Report

    You have already reported this .