lupa-f
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I went once a few years ago. It was on a Friday, so they only had us sit in a room for about an hour then we were let go since they knew there wouldn’t be anything new coming in that day. I got it again a year or two later and had my doctor get me out of it that time. I was like you and thought it’d be interesting so that’s why I went the first time, but the idea of having to sit there doing nothing all day waiting to get called in, and then maybe having to show up several days in a row if I was picked just wasn’t worth whatever interest I might have had.
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Killing Eve on Hulu fits in with the Dexter and Breaking Bad type of series, police hunting a bad guy kind of thing where they show both sides.
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I don’t know if you’re still able to edit it or add editorial comments, but you really shouldn’t let him say there’s a cure for SMA, there isn’t. Yes, there is a treatment, but if you’ve read much about it you’ll see that everyone makes sure to never say it’s a cure.
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I lean toward more comedies with a long running drama when I need something different. Started up Person of Interest a little while ago, it starts off as a sort of usual CBS procedural (with some painful dialogue) but is slowly shifting to an almost sci-fi/thriller show. Can you list some of the ones you’ve already watched?
Legion season 2 was just added to Hulu this week if you’re into (very very) weird, comic book-ish shows.
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I just scheduled what will be my 6th treatment at the end of February. Mine have gone okay so far, I don’t have any spinal rods or anything so it’s more or less straight forward, but the last time I guess I was lying on the table a little differently and it closed up the spot they’d used previously. They kept trying to stick it through there, but kept hitting bone and sending shocks of pain down my legs and my legs ached for about 2 weeks after that. I could still function, but it was annoying. Each time I’ve felt like I’ve been on the edge of getting headaches for about a day or two afterward whenever I exerted myself, but if I backed off what I was doing the feeling would go away.
My biggest issue with the process is the hospital I go to makes me get there 3 hours early for blood work and then keeps me for 2 hours after which means I get stuck either in morning or afternoon rush hour depending on my appointment time. It makes a 40 minute trip into nearly 2 hours.
I’ve definitely noticed improvements though so even with the hassles it’s been worth it. I live on my own, no assistants or anything (I have type 3, I stopped walking about 12 years ago), and the past couple years I’ve been really close to feeling like I couldn’t do it any more. Especially in winter I would have days where I felt like I couldn’t do the things I needed to, but so far this year I’ve felt okay. I can’t really tell if I’m still improving, but I’ve already gotten enough strength back that I’m sort of good with where I’m at. The main thing for me was to just stop getting worse and it’s definitely done that.
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Hi Kevin, just joined the other day partly because I wanted to comment on the issue of disabilities being portrayed by disabled actors. (I’ve also been reading this site for over a year, but was always just lurking).
Have you ever seen Legit by Jim Jefferies? The pilot shows the story he told in one of his early standup specials about how he took his friend with muscular dystrophy (he never says what type, it might even have been SMA) to a brothel. In a later standup special he tells about how he wanted to cast a disabled actor for the part of his friend. He talks about the process of seeing different people and how he decided to hire one person and how that ended up. That person didn’t work out for ridiculous reasons (I won’t ruin it), and after that he says he eventually went with DJ Qualls, partly because that DJ almost looks like someone with muscular dystrophy, but also that Jim found out that even if they hired someone with MD, because of guild rules that person would only be allowed to work a limited number of hours per day. And since they’d often film for 12 hours or more a day, it simply wasn’t possible for it to work since Jim’s friend is in nearly almost scene.
Have you heard anything like this? I’ve tried doing internet searches to see if I can find out about such a rule but haven’t had any luck.