SMA News Forums Forums Our Community Adults ​With​ ​SMA Interview Column #4

  • lupa-f

    February 8, 2019 at 2:25 am

    I don’t know if you’re still able to edit it or add editorial comments, but you really shouldn’t let him say there’s a cure for SMA, there isn’t. Yes, there is a treatment, but if you’ve read much about it you’ll see that everyone makes sure to never say it’s a cure.

    • kevin-schaefer

      February 8, 2019 at 9:26 am

      Lupa, I think what Sam meant was that there’s hope for a cure in the future. He understands that Spinraza is not that, but that there could be something down the road.

    • ryan-berhar

      February 8, 2019 at 10:06 pm

      Technically it’s a treatment and not a cure, but many people use them interchangeably. Hopefully it won’t mislead anyone given the context of the interview.

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