This topic contains 0 replies, has 1 voice, and was last updated by  DeAnn R 1 week, 6 days ago.

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     DeAnn R 
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    I think it’s safe to say Spinraza is changing the face of SMA.  Diagnosis now comes with hope instead of fear.  As I’ve come to learn, the earlier treatment starts the better the chances are to save those neuron connections.  That’s why I believe infant screening is crucial.  Here’s a great article that points this out: https://smanewstoday.com/2018/01/25/sma-expert-arthur-burghes-in-a-speech-in-poland-urges-universal-newborn-screening/

    My hope is that every state adopts infant screening.  I’d love to know if you agree with me on this, or even if you disagree.  What are your thoughts?

     

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