-
Universal Infant Screening
I think it’s safe to say Spinraza is changing the face of SMA. Diagnosis now comes with hope instead of fear. As I’ve come to learn, the earlier treatment starts the better the chances are to save those neuron connections. That’s why I believe infant screening is crucial. Here’s a great article that points this out: https://smanewstoday.com/2018/01/25/sma-expert-arthur-burghes-in-a-speech-in-poland-urges-universal-newborn-screening/
My hope is that every state adopts infant screening. I’d love to know if you agree with me on this, or even if you disagree. What are your thoughts?
-
5 Replies
-
I’ve heard Indiana will become the fourth state to adopt infant screening for SMA. Anyone know the other 3 states?
-
Thanks for sharing DeAnn. I agree that newborn screenings are a crucial advancement in the medical world today.
I believe North Carolina has already adopted newborn screenings, or is in the process of doing so. This is definitely an important discussion in the SMA community today.
-
Minnesota started screening infants on 3/5/2018. Progress!
-
No progress in Switzerland. No any newborn screening to date.
-
Hi Yan, thanks for joining the discussion.
Hopefully Switzerland will start newborn screenings soon enough. Keep us posted!
-
Log in to reply.