The Road Ahead
In the fall, Stella, Ariya and Cinch are all starting kindergarten. Spoiler alert: they’re excited. Their parents are excited, too, and nervous – the transition to school is a big milestone for any child, but going to…
Sponsored Content
Life With Spinal Muscular Atrophy: Diagnosis and Beyond
by Novartis
For many families, time seems to stop the moment they hear the phrase, “Your child has spinal muscular atrophy.” Now, thanks to treatment innovations over the last decade, this isn’t the end of the story—it’s only the beginning. Hear stories of tenacity, resilience, and hope from caregivers of children with SMA. This content is sponsored by Novartis Gene Therapies.
Be inspired by Aniya’s story.
Aniya’s parents have consented to share their story. Today, Aniya is an energetic, determined, happy little girl—thanks to her parents’ perseverance to get their baby the treatment that she needed. Hailey and Will got…
The Importance of “Yet”: Life Lessons from Little Advocates
In September of 2020, Darlisha and Jarrett Barnes got an urgent voicemail about their newborn, Harley. Harley had tested positive for spinal muscular atrophy (SMA) – a rare genetic disease that, when left in its most severe form,…
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9/2024
