I had no idea that I didn’t have a “normal” amount of makeup. Despite owning two full bags of products, excluding my brushes, it never occurred to me that I possessed more than the average person. It wasn’t until I brought my kit to a friend to borrow for her…

Changes in the motor unit, which is made up of a nerve cell and the muscle fibers it controls, may help doctors better understand how severe spinal muscular atrophy (SMA) is in each person, according to a new study. The researchers found that people with more severe SMA had…

Alice Wong, a disability rights activist with spinal muscular atrophy (SMA), devoted herself to fighting for the rights of people with disabilities and other underrepresented communities. When she died at age 51 in November, she left behind a legacy of advocacy and action. In her 2022 memoir, “Year…

“How did your parents do it?” People have asked me this many times over the years. It usually comes up when they learn of some aspect of my independence, an accomplishment, or something else that impresses them about the way I live my life in a wheelchair with spinal…

Evrysdi (risdiplam) can stabilize motor function, improve swallowing ability, ease fatigue, and improve life quality in adults with spinal muscular atrophy (SMA), according to a review of scientific literature. Although the researchers stressed that more studies are needed, they said available data indicate that Evrysdi “shows a favorable…