Columns

Why actors with SMA deserve greater media representation, part 1

First in a series. Maybe it (sadly) goes without saying, maybe it doesn’t, but if you Google “spinal muscular atrophy actor,” you won’t find a single SMA patient with a long filmography filled with recognizable projects. You’ll find Alexa Dectis, the child actor turned entertainment lawyer and one…

My whirlwind adventure of getting lost in Singapore

“Time for your whirlwind 20s, babe!” When my best friend and fellow SMA News Today columnist, Brianna Albers, said that a month ago, I couldn’t have imagined how much I would feel her words. She’d said it in the context of me wanting to meet some (admittedly questionable)…

How a simple page turn became a big victory

As much as I love to read, sometimes the physical act of doing so isn’t easy. Books quiet my mind. They transport me to another world where hospitals and doctors’ offices aren’t the norm. However, my hands and fingers don’t always cooperate when I want to read. Something as simple…