Lately, I’ve been asking myself whether what I have right now is truly enough to carry me through the hard seasons. It comes as the New England Patriots are heading to the AFC championship game. For a lifelong fan like myself, it has been an exciting season to watch, with…
Columns
When you live many years with a disability like spinal muscular atrophy (SMA), as I have, you get used to pain and discomfort being a part of your life. My pain isn’t as severe as that of some people I know, so I’ve never needed long-term treatment for…
Last year sprinted to the finish line at breakneck speed. I couldn’t have stuffed much more into December’s calendar. Wrapping presents, finishing intense seasonal activities and mandatory year-end tasks, fulfilling copious obligations, and escaping to Charleston, South Carolina, for a delightful family getaway left no calendar square unscathed. Due to…
I recently returned home from a seven-week holiday at my parents’ house. It’s become my annual tradition, and for a lot of reasons. It gives me a good chunk of quality time with my family, and the weather in the South is usually at least 10 degrees warmer than it…
I knew things would change when my mom retired. For one thing, there was going to be a whole third person hanging around our house; for most of my life, it was just my dad and me, with my mom winning the proverbial bread every day of the week.
I had no idea that I didn’t have a “normal” amount of makeup. Despite owning two full bags of products, excluding my brushes, it never occurred to me that I possessed more than the average person. It wasn’t until I brought my kit to a friend to borrow for her…
“How did your parents do it?” People have asked me this many times over the years. It usually comes up when they learn of some aspect of my independence, an accomplishment, or something else that impresses them about the way I live my life in a wheelchair with spinal…
There’s a character in the musical “Wicked” that I strongly relate to. She has the cutest slippers in the film, and her first day at Shiz University barely hints at the whirlwind of tragedies that await her. Throughout the story, she spends much of her time trying to prove herself.
It’s that time of year when people are thinking about resolutions, things they can do to improve themselves in 2026. Whether it’s losing weight, gaining muscle, learning a new skill, or going on an adventure, many of us like to set goals, make plans, and hope that, by…
Every December, I write an end-of-the-year column. I try to make it inspiring, or at the very least optimistic, but sometimes I can’t even accomplish that. Last year’s wrap-up was essentially a long-winded way of me saying, “See you never, 2024, and good riddance.” For the most part, though,…
