In this MDA video meet Joe Akmakjian, a 24-year-old with SMA who lives his life to the fullest and is about to embark on his biggest test of independence yet. (Hint to his family: He’s moving out.)
Diagnosed with spinal muscular atrophy (SMA) at just 15 months old, Akmakjian has an amazingly positive outlook on life and doesn’t let his disability get in the way of anything he wants to do, including skydiving.
“I’m definitely disabled, its part of my identity. But it’s not the first thing I think of, and it’s not the biggest component of my life.” — Joe Akmakjian
SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.
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